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Collected Item: “Getting Health Care through the Covid Madness”

Give your story a title.

Getting Health Care through the Covid Madness

What sort of object is this: text story, photograph, video, audio interview, screenshot, drawing, meme, etc.?

text story, personal

Tell us a story; share your experience. Describe what the object or story you've uploaded says about the pandemic, and/or why what you've submitted is important to you.

At the beginning of 2020, I started to experience a dull, nagging pain in my lower right abdomen. Didn't think too much about it at first, but it kept showing up and then it didn't go away. I made an appointment to get it checked out and was told, "Well, I don't know what it is, so we'll get an ultrasound". Got an ultrasound and nothing was found. Next, I went to the OBGYN and received a full pelvic exam. Was told, "Well, everything looks good, just walk more and drink fluids". This took about a month to see two separate doctors and receive the ultrasounds. The pain persisted and the symptoms got worse. It wasn't just a dull ache, but now cramping, exhaustion, trouble with bowel movements, and the pain moved north to my upper right side, under my ribs and into my back. I was worried and scared. I was referred to a Gastroenterologist and had to wait two months. Two months with terrible symptoms. When I finally got in to see my GI, she seemed positive and wanted to get things moving along. I got blood tests done and when they came back, it showed that I had high TG levels for gluten. In other words, signs for Celiac Disease. To diagnose it, an upper endoscopy with biopsy of my intestines was needed. Another month of waiting. A week before my scheduled endoscopy, the hospital called and cancelled my appointment because of Covid-19. I was furious. They were not accepting patients and most all procedures were stopped. Don't get me wrong, I take Covid seriously and I do my best to social distance, I wear my mask everywhere, and I'm crazy about sanitizing, but I was so angry that my extremely important procedure was cancelled. At this point, the symptoms were agonizing and I was forced to wait. After a couple weeks I emailed my doctor and explained to her that things were getting worse and I didn't know what to do at this point or how to take care of my body. I got a call within a week and was told that my case was reviewed and that an endoscopy would be scheduled for me. Huzzah! About two weeks after that I finally got my diagnosis, and yep, I have Celiac Disease. Trying to figure out what was wrong with my body during Covid was a nightmare. I only shared the basics of what happened, but there was a lot of pain, tears, and fear. If it was something more serious that needed more immediate help I would have been screwed. I am still dealing with my disease and I still have my bad days. I unfortunately am still unable to go see my doctor as it is all online which makes it feel so impersonal. For all those having to schedule appointments and see doctors, good luck!

Use one-word hashtags (separated by commas) to describe your story. For example: Where did it originate? How does this object make you feel? How does this object relate to the pandemic?

#healthcare #celiacdisease #glutenfree #covidandhealthcare

Who originally created this object? (If you created this object, such as photo, then put "self" here.)

RD

Give this story a date.

2020-04-10
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