Items

• 
  2022-07-04

  When is long-COVID a disability?

  This is a news story from Stephenson Harwood, a law firm with its headquarters in London. This is on the classification of long-COVID as a disability. Using the Equality Act from 2010, it classifies a disability as physical or mental impairment which would prevent someone's ability to carry out daily activities. Using a case of Burke v Turning Point Scotland, it describes Mr. Burke developing long-COVID symptoms, which prevented him from doing work. He describes immense fatigue, where tasks like showering would become exhausting. Due to this, he remained off work, with his sick pay ending around June 2021. In August 2021, he was dismissed on grounds of ill health. The ruling with the Scottish Employment Tribunal declared that between November 25, 2020 and August 13, 2021 that Mr. Burke was disabled. For his specific case, he can now file disability discrimination against the company, but it does not mean the employer discriminated. The law firm suggests that employers develop methods to better serve employees that could end up having long-COVID. Some of these suggestions include: change in policies around disability services, changes in communication to handle an employee suffering from long-COVID, and a supportive environment where employees will feel comfortable giving updates on their symptoms.
• 
  2022-06-25

  Respecting bodily autonomy

  This is a tweet from metraux_julia. She is discussing the importance of wearing a mask for those that could be at high risk. For disabled people, they often face higher chances of getting COVID, in addition to having more complications with it. This is an advisement specifically for attending protests.
• 
  2021-08-10

  Get vaccinated so I can communicate again.

  Caption to post: As I’m sure you’ve seen and experienced, mask mandates are starting to come back. In stores, offices, and on my college campus as well. As a person with hearing loss, masks make it so difficult me for me to communicate. I rely so heavily on lipreading, seeing how the mouth moves when speaking, to understand what is said. Without lipreading, my speech recognition is around 16%. This means with masks, I can only absorb 16% of all interactions - that is incredibly isolating. When I go back to the classroom in September, it’s going to be so difficult to navigate the classroom setting when I can’t understand anyone. My teachers will have clear masks provided, but what about during group work or when students ask questions that I might also have? I’m going to completely miss out on the college experience I’ve been longing for for a year and a half because people won’t get vaccinated. I’m tired of disclosing my hearing loss to check out at a store. I’m tired of constantly fighting for closed captioning for online lectures. I’m tired of living in a pandemic where we have a solution to end it. Vaccines work. Vaccines save lives. Getting the vaccine means you’re helping deaf and hard of hearing people get back to a place where they can communicate again. SAVE this post and SHARE to spread awareness. This topic is NOT talked about enough and it’s something that affects the deaf and hard of hearing community every single day. ID IN COMMENTS
• 
  2022-04-19

  Pride month events return with new mission to uplift people of color, trans civil rights

  This is a news story from USA Today by Bill Keveney. Pride parades will be returning to full-scale since 2019. With the events that happened during COVID, some changes have been made in how it is celebrated. For 2022, more people of color and trans people have been added to leadership positions. Participation is also going to be more accessible for disabled and low-income as well, by making some events online for easier access. Police brutality will also be addressed due to the Black Lives Matter protests of 2020. Seattle Pride has banned police from Pride. Along with this, there is also the theme of speaking out against the anti-LGBTQ legislation that is happening across the United States.
• 2022-04-29

  Dementia and Covid

  Over the last two years, being away from people, and having to social distance, I have still taken care of my grandfather. He has Dementia. Now that things are starting to get a little better, and a lot of people have been vaccinated, I have been able to have him come stay the night at my house every Friday. The first couple of times he was confused, but now he seems to instinctively know the routine of it all. He likes getting to spend time with my stepdad and my girlfriend, and walk outside to see the horses. Covid has taken a lot, besides the countless lives. It rapidly increased my grandpa’s progression in memory loss. Most days he can’t quite remember my name or my mom's name. But at least he is happy, he laughs and smiles, and knows that he loves and trusts us. Him not being able to have as much social interaction as he used to has drastically changed his cognitive abilities. Today is a Friday. He was pretty quiet on the drive from his house to mine. I got him an ice cream cone. No matter where he is cognitively that man will always, always want an ice cream cone. Vanilla to be specific. We used to get ice cream cones from McDonald's when I was little when he would pick me up to spend the night at his house. I wonder how many ice cream cones we have left. I hate that his memory has been cut short and stripped from him. He had been slowly declining for the last few years before Covid, but once we hit the lockdowns, it was all over. He was good at hiding it for the first 6 months or so, but in the last year and a half it has been very clear. I miss who he was, I know we all do.
• 
  2022-04-29

  For Those Most at Risk, COVID-19 Is Not Over

  This is a news story from Inside Higher ED by Josh Moody. As schools begin to resume to pre-COVID standards, not all are happy with this change. Those with disabilities worry about the loosening guidelines and how it would affect their health. COVID rates vary across the country, but many colleges are starting to drop protocols. Some disability advocates claim that this is a wrong decision from the colleges doing this, as it is putting people at high risk in more danger. COVID Safe Campus, a group of high-risk academics and activists with disabilities, recently launched a report card grading college coronavirus policies. The effort, they say, grew out of concerns that high-risk individuals are being left behind as colleges return to pre-pandemic normalcy. Colleges are graded on masking, COVID-19 testing and vaccination policies, and access to remote learning. Of the 90 institutions graded from this organization, majority have received a D or an F, and none earned an A.
• 
  2022-04-20

  'More fearful than I was': At-risk immunocompromised Americans decry lifting of travel mask mandate

  This is a news story from USA Today by Ella Lee. This is about pushback against the lifting of the mask mandate, as it has made immunocompromised people afraid. "Being immunocompromised, it's already a huge risk getting on a plane with everybody masked," said Derek Schmitz, 17, of Oxford, Alabama, who takes immune-suppressing arthritis medication and has to fly for work as a disability advocate. "Now, knowing that I most likely will be one of the only people on a plane with a mask is petrifying." After the lift of the mandate for planes and other public transportation was voided, ride share companies like Uber and Lyft have followed suit in removing their own mandates. "I was angry and felt hopeless," said Erin Masengale, 33, who has multiple autoimmune diseases treated by immunosuppressants. "I just want people to realize that when they cheer for the ending of protections, they’re cheering for the ending of access to everything for people like me." Under the strict definition of immunocompromised, only about 3% of Americans fit that definition. Though, the author mentions that disabled and chronically ill people, a much larger population, also face risk with the lifted mandates. The question I have for people that read this is: is it worth it to keep the mandate even though it caters to a relatively small population? Would it be wiser for people already with these ailments to mask on their own instead of mandating it for everyone else, especially if overall cases and hospitalizations are lower? These are the questions I have after reading this article. I am not against people masking when they see fit, but it is clear that these mandates have worn many people out.
• 
  2022-03-08

  I am not ready to give up my mask

  This is an Instagram post by mrjeff2000. This post shows a picture with words on the mask for reasons to keep wearing one. Some of the reasons include: too many still being hospitalized; and the protection of the immunocompromised and disabled.
• 
  2022-04-09

  Coping with humor

  Sometimes coping through humor is what gets us through.
• 
  2022-03-25

  Virginia's Law Barring Mask Mandates Does Not Apply to 12 Children with Disabilities

  A news article from NPR talks about the parents of 12 children that challenged the newly signed law by Governor Glenn Youngkin to halt the enforcement of that law because it violated the children's rights under the federal American with Disabilities Act. This law would only give parents the right to choose for their own children. The group of parents have kids with health conditions that range from asthma to cystic fibrosis, which put them at heightened risk for COVID-19. What about other kids that have health conditions that make them a heightened risk for COVID whose parents didn't say their federal rights were violated?
• 
  2022-02-22

  COVID support groups

  I did some heritage work for this hospital a couple years ago so I follow their social media. Apparently they’ve founded a COVID support group for people who have been profoundly impacted by COVID-related illness, death, and disability. I sometimes think that the chronic illness and disabling nature of long COVID is often overlooked. Who can blame anyone for overlooking it with all of the more obvious, loud, visible problems wrought by the pandemic? Anyhow this is something to think about.
• 
  2020-03-24

  Disabled People React to Coronavirus Work From Home Accommodations

  Individuals with disabilities have fought for accommodations to work from home for years. The pandemic has seen the development of widespread teleworking, with employers now providing accommodations for their workers to work at home. This situation is bittersweet for disabled individuals, who have experienced job loss and job frustration because of the lack of accommodations they faced in pre-pandemic times. It is hoped that now that employers are providing alternative work options including working at home they will continue this trend post-pandemic and provide more job opportunities and job growth for disabled individuals who require work-at-home options.
• 
  2021-03

  How to Survive a Plague with a Disability

  As I’m writing this, it is March 2021 and it’s been a year since I’ve updated this blog. Although I don’t only write about travel here, it’s been depressing to look back on my past trips and have to wonder when I could be in the world again. But I’ve been far from silent during this time. You can read many of my reflections on the pandemic and other topics over at The Mighty, where I have been an editor for the past five years. One year ago, when the pandemic was just beginning in the United States, one of my good friends posted a social media message about supporting each other during what most people thought would be a strange, scary, but ultimately short period of our lives. Part of it went something like this: My mask protects you. Your mask protects me. It’s a nice sentiment. Wearing a few layers of cloth over your face may not help you much, but it helps to prevent other people from getting sick. It’s a kind, visible act we can all do to show we care during a difficult time, to protect others who are at risk even if we may think we would not become seriously ill. It seems so simple, right? How could people not do this? But we all know what happened. “My mask protects you. Your mask protects me,” only works if the other person values your life enough to consider it worth protecting. I’ve been horrified by the number of government officials and online commenters who have viewed the deaths of elderly and disabled people as “acceptable losses” in exchange for keeping non-essential gathering spaces open. My life, and the lives of people with high-risk conditions, are more important than your trip to Disneyland. Don’t you think we want to go to Disneyland too? I’ve also noticed that able-bodied people often assume disabled people will be provided for in emergencies, and in general. They believe there are a lot of government programs and charities to help us, and that such programs are run well and meet our needs. This widespread — but utterly false — belief in a functioning safety net for “the vulnerable” gives people an excuse to behave selfishly while convincing themselves they’re not doing anything wrong. “Of course, there will be a plan to protect nursing home residents, and immune-suppressed people can stay home, so we can throw parties and go without masks if we don’t like them.” In reality, the needs of people with disabilities are often disregarded, misunderstood, ignored, and even actively opposed. We have to fight for access to everything, and sometimes end up on multi-year waiting lists for housing assistance, in-home care, and other essential programs and services. We must battle with government and private insurance to get the mobility equipment we need. We are GPS tracked like criminals if we need personal care assistants, with “fraud prevention” used as an excuse. We often depend on programs with ridiculously complicated requirements, and one missed deadline, one paperwork error, one month where we made “too much money” can cost us everything.
• 
  2021-04-06

  Open doors

  I am hard of hearing but I also have a chronic illness and a physical disability. For years I, and others like me, have asked to do more work from home and use video chat. We were told it’s too hard and expensive. Then COVID19 became a pandemic and all of a sudden our request wasn’t so hard or expensive anymore. All of a sudden we all had the same need. It was exciting as doors opened up for me that were always closed. I attended conferences I’d always dreamed of attending. Not only that, but since I was used to teaching music online already, my fellow music teachers gleaned the info from my lived experience. For the first time I was an equal. My answers for things came from resources they would never have thought worthy of consideration. With my fellow artists also now unemployed, I had everything necessary to start my dream business. A inclusive production group. Now when society uses the word inclusive or accessible, they don’t bother learning what this entails so they are mostly seriously lacking. My group represents, every body type, age, gender, ability, and voice type. No longer will anyone be stereotyped. When I sing for people, they say they could listen to me sing often. Yet I’m never considered for shows, wheelchair aside, due to me being a mezzo soprano. Producers want lyrics. The same voice type for every lead role. Not in my group. I write my own musicals in a way everyone gets a change to take centre stage. Now that my fellow artists are back working again, those who I hired 2020 are still with me. I am very grateful the doors of opportunity opened even if for a short time because that was enough to keep them open for me where needed. That was enough to gather those who can make and keep this dream a reality. We are set to debut our first show in June 2021. It doesn’t get better than that. So while COVID itself is horrendous, the lifestyle the pandemic made universal helped others see what we live daily, and it also created a more universal work place for all.
• 
  2021-02-19

  Professor Abusive Toward HoH Student in Online Class

  A professor is being placed on paid administrative leave after a viral video showed the instructor berating a student in front of the Zoom class.
• 
  2020-12-30

  Beyond Control

  Kelsie Grazier talks about her hearing loss, the uncertainty of pregnancy during Covid-19 and how both are heavily influencing her art. Her story resonates with me as I loose my own hearing and seek out representation in a world that ignores deafness. Kelsie Grazier's story resonates. Especially with the daily frustrations Covid-19 has brought upon us.
• 
  2021

  CRSJ COVID-19 Series

  The American Bar Association is hosting a series of webinars on various social Justice issues and how they relate to Covid-19. Webinars include: Pandemic Trials: Defending Criminal Clients During COVID-19. New Jersey COVID-19 Jail Release Agreement. Expanding Pretrial Release in the Age of COVID-19. Implications of the COVID-19 Pandemic on African Americans and Communities of Color. COVID-19 and the Compassionate Release of the Elderly, Infirm or High Risk. Reentry Planning for COVID-19 Releases. Issues Affecting Native American Communities During the COVID-19 Crisis. COVID-19 and Child Welfare Cases. Coronavirus: Homeless Community Adverse Impact from Eviction & Lack of Safe Housing. Public Health Measures In Response to COVID-19 (CLE), Lessons from Past Disasters: Criminal Justice Response to COVID-19. COVID-19: Threats to Democracy and to Public Safety Through the Lens of the Asian American Experience. Religious Freedom Implications of the COVID-19 Pandemic. Disability Discrimination in the Rationing of Life Saving COVID Treatment: Who Gets Left Behind? This is not the full list.
• 
  2020-08-17

  Jewish Melbourne: online cooking

  A photo taken by Peter Haskin and shared on the Australian Jewish News's facebook page: "As part of The AJN’s “Our resilient community during COVID” series, we feature Melbourne’s Racheli Naparstek who shares with us a dish she just made in her private online cooking lesson with Nitza Marom, Access Inc.'s hospitality program manager. Cooking classes are one of a suite of online programs developed by Access in response to COVID-19. For many members of our community who have disabilities, the challenges of the current situation are magnified. Access Online was developed to support participants in keeping their independence, employment and personal development goals front of mind despite the pandemic, and despite the reintroduced restrictions."
• 
  2020-09-07

  Jewish Melbourne: Access Inc talks to JCCV about their Covid Response

  At each Jewish Community Council of Victoria (JCCV) plenum meeting they have a guest speaker. At their September plenum meeting, "Access CEO Sharon Malecki will be speaking about Access Inc.'s Covid Response - Celebrating Ability in Our Community During Crisis at the Jewish Community Council of Victoria Plenum Meeting TONIGHT. Sharon will be talking about Access Online the new suite of programs that has been integral in helping participants manage their time under restrictions and ensuring they do not feel "abandoned"."
• 
  2020-06-13

  Do face masks make it more difficult to communicate?

  As someone who is Hard of Hearing, I worry about returning to work in the fall. I never realized how much I rely on lip and expression reading before now. With masks and zoom meetings I struggle to understand conversations that normally would be simple. I have hearing aids but unfortunately they do not help much when context clues are deprived. Soft spoken, mumblers, low voices are all drowned out into the background. I search peoples eyes for clues, are they laughing? Are they concerned? In my Deaf and HoH support group the threads are now saturated with frustrated people just venting. Something as simple as a trip to the grocery store now requires a pad and pencil while pointing to the ears repeating, "I cant hear you. Let me write it down. I am Hard of Hearing/Deaf. Sorry. Sorry." While people behind you get irritated. I have thought about getting a neon shirt to wear at the store with the words, "I am Hard of Hearing, I can't hear you!" In zoom meetings I can see peoples faces. It provides context I miss so much. But I have low-frequency hearing loss so the voices of men are blurry at best. Arizona State University has a fantastic disability resource center and they have started providing me with a captioner who attends classes with me and transcribes for me live. I don't always need her but it has been nice not having to message classmates through a class to ask what was missed. This is a new world for many deaf/Deaf/HoH who are my age. We have always had ways to work around our disability. Now masks and technology are depriving us of coping skills we relied on.