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  2021-03

  How to Survive a Plague with a Disability

  As I’m writing this, it is March 2021 and it’s been a year since I’ve updated this blog. Although I don’t only write about travel here, it’s been depressing to look back on my past trips and have to wonder when I could be in the world again. But I’ve been far from silent during this time. You can read many of my reflections on the pandemic and other topics over at The Mighty, where I have been an editor for the past five years. One year ago, when the pandemic was just beginning in the United States, one of my good friends posted a social media message about supporting each other during what most people thought would be a strange, scary, but ultimately short period of our lives. Part of it went something like this: My mask protects you. Your mask protects me. It’s a nice sentiment. Wearing a few layers of cloth over your face may not help you much, but it helps to prevent other people from getting sick. It’s a kind, visible act we can all do to show we care during a difficult time, to protect others who are at risk even if we may think we would not become seriously ill. It seems so simple, right? How could people not do this? But we all know what happened. “My mask protects you. Your mask protects me,” only works if the other person values your life enough to consider it worth protecting. I’ve been horrified by the number of government officials and online commenters who have viewed the deaths of elderly and disabled people as “acceptable losses” in exchange for keeping non-essential gathering spaces open. My life, and the lives of people with high-risk conditions, are more important than your trip to Disneyland. Don’t you think we want to go to Disneyland too? I’ve also noticed that able-bodied people often assume disabled people will be provided for in emergencies, and in general. They believe there are a lot of government programs and charities to help us, and that such programs are run well and meet our needs. This widespread — but utterly false — belief in a functioning safety net for “the vulnerable” gives people an excuse to behave selfishly while convincing themselves they’re not doing anything wrong. “Of course, there will be a plan to protect nursing home residents, and immune-suppressed people can stay home, so we can throw parties and go without masks if we don’t like them.” In reality, the needs of people with disabilities are often disregarded, misunderstood, ignored, and even actively opposed. We have to fight for access to everything, and sometimes end up on multi-year waiting lists for housing assistance, in-home care, and other essential programs and services. We must battle with government and private insurance to get the mobility equipment we need. We are GPS tracked like criminals if we need personal care assistants, with “fraud prevention” used as an excuse. We often depend on programs with ridiculously complicated requirements, and one missed deadline, one paperwork error, one month where we made “too much money” can cost us everything.
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  2021-01-19

  Resilient Child, Resilient Mom- Reflection on 2020

  The first picture was taken April 29, 2020. Remote schooling was not going to end, we thought it would only last a couple of weeks. My child was falling apart, I was falling apart. The second picture was taken about seven months later, November 27, 2020. I had been furloughed, school opened up and then went remote again, we learned how to wear masks, we learned how to social distance. We joined the family bubble, in Illinois. I reflect in January 2021 and I want to note that we are figuring it out together. We continue to teach each other. The second picture is my favorite picture of 2020 that I took. I think this picture speaks to the attitude we are putting forward together. This is a picture of my daughter with her cousin, this picture gives me hope and energy.
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  2020-09

  Jewish Melbourne: NCJWA Elul Stories

  The National Council of Jewish Women of Australia compiled and shared "24 personal stories from Australian Jewish Women About Covid-19 and High Holidays"
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  2020-10

  Jewish Melbourne: 'Thoughts on Isolation' by Stan Marks

  Stan Marks, who is 91 years old, reflects on living during the pandemic, and also shares a letter he wrote to share with the students in Year 12 at Brighton Grammar, his old school
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  2020-07

  Jewish Melbourne: Survivors in Isolation - A different isolation

  In July Elly Brooks - who is a photographer, member of the Board of the Jewish Holocaust Centre, and President of Friends of JHC - worked with the JHC to take photos of Holocaust survivors at their front doors. In line with Melbourne's lockdown procedures, the JHC was closed, and everyone was required to be at home, so these photos show the survivors as they stayed home to isolate. Elly Brooks reflected: "Holocaust Survivors and other elderly people are perhaps more impacted in this time of covid isolation than younger people as they are confined to their homes under the country’s partial lockdown and many find themselves far from their usual network of support. What shines through this series of images of Holocaust survivors in Melbourne is a strong spirit to overcome adversity, with an understanding that it is a temporary. Most of the survivors pictured, have been coming to the Jewish Holocaust Centre for many years, presenting their testimony to students and the general public and being connected to a community. In early March, when the pandemic was becoming an inevitable danger in Melbourne, the survivors were the first to be asked to stay home, away from the JHC. For some, the memories of our survivors are always there just below the surface and this enforced isolation makes our elderly feel vulnerable and threatens their independence. As a photographer, I wanted to capture the strength and dignity of survivors as they posed on their doorsteps of their homes during this lockdown.As a longtime friend to most of them, I have been missing them so it also gave me good reason to visit them and hear their wise words. For some the virus brought back memories: “that feeling of dread all the time. You never know if other people on the street are going to give you the virus, or they were going to turn you in to the Gestapo because you were a Jew.” Each survivor had their photo taken and they each contributed a reflection: Joe de Hann: I keep occupied by reading and cooking for myself. I have been alone a long time so I am used to being by myself but I miss the Holocaust Centre and the people Henry Buch: I feel unchallenged and lack motivation. My son visits but my daughter is in isolation. Jewish Care assists me but when you are isolated like this memories and worries come back Irma Hanner: “It’s not a war! “We are in a lucky country but even so we must be aware of and call out racism. The extremes of politics both right and left sides are bad. “I miss my work at The Jewish Holocaust Centre” Gisa Frayman: I am lucky that my children come to visit which means that I am not alone. We talk everyday on the phone and as long as they are well, they visit me John Lamovie: I have a large family and before this isolation they visited often but not now. That is the hardest for me at this time.Life during the pandemic ihas an unsettling resonance, especially the isolation from family members. Some of my family drive by to wave to me. A couple of family deaths were very hard to reconcile at this strange time of isolation. I attended a virtual funeral. Overall I feel lucky and nothing to complain about. Abe Goldberg: It’s not a war but it is very hard for me because my wife Cesia is in care and I cannot visit her. That is devastating for me not being allowed to visit her. We have been together so many years Sarah Saaroni: I’m perfectly fine and see my family from a distance. I am fully occupied and well looked after. Henri Korn: Life during the pandemic is unsettling especially the isolation from my friends and family. “It pains me that I cannot be with my family, with my friends,” Wolf Deane: We are happy to be living here and have our family close by. Joe Swarczberg: I miss The JHC, the students, staff and my friends. I used to go often and now I just stay at home. I hope I live long enough to see the new Centre. David Prince: I miss my work at The Holocaust Centre especially seeing the students. I am used to being independent and have friends and family nearby. It is an unsettling time and I hope we can go back to the way it was and I am around to see the new Centre. Viv Speigel: I miss going to The Centre but I am lucky to see my family from a distance and I have all that I need. Maria Lewitt: I am happy to be close to my family and well cared for. John Chaskiel: I am fine and my family visits from a distance. They come to my driveway but I miss The Holocaust Centre and the students. I hope I will see the new museum