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immunocompromised
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2023-07
Grandma's Funeral: A Trip Not taken
It tells a story about how COVID prevented my family from attending my grandmother's funeral. Leaving us unable to properly say goodbye and grieve with family. It's a travel story with no travel. -
2021-12-25
Immunocompromised at Christmas
The impact of COVID-19 on travel and tourism over the past three years has been significant, and in my experiences, travel for me in post-COVID era has been wildly different - as my mind swirls around a large concern that I could possibly do harm to my immunocompromised husband. He’d experienced major spinal and heart surgeries in the summer of 2020, and the following year a round of COVID left his nervous and immune systems permanently weakened. My parents had planned a large family trip in May 2021, and my thoughts continued to swirl around the potential for another round of COVID afflicting my husband. I had us cancel. Months later, my family finally convinced us to get on a plane for Christmas to Austin, Texas to see my sister’s new home. It would be our son’s first flight, too, which only added to my anxiety. It was December 2021, and most restrictions were still in place at airports at this time. I was grateful for the number of passengers on the flights, in the airports, and in public transportation hubs utilizing masks and maintaining distance from one another. I recalled seeing one family, completely maskless, at the airport. They seemed so out of place - and to be honest they looked very uncomfortable - too. Luckily, like us, my extended family was hesitant to explore the hustle of downtown Austin, so much of the trip was spent with everyone at my sister’s new home, cooking, reading, completing puzzles, and most importantly: getting her lawn familiarized with several dozen rounds of Bocce ball. It was the first time we were all able to come together after the start of the pandemic, and I felt grateful for the opportunity to be with my family in the same safe space. We got way too competitive, but the laughter during Bocce proved the most memorable part of the trip. I loved how happy my family looked in this moment, especially my sister (front in orange) and my husband (over her right shoulder). I am not sure what the future looks like for COVID and travel, but for me, I know that it already looks different - I will continue to mask, I will distance, and I will choose options that will do the least amount of harm to those I love and the people I may meet along the way. -
11/30/2021
Melinda Ruzich Oral History, 2021/11/30
Melinda Ruzich is a 20-year veteran kindergarten teacher from Hibbing, Minnesota, a rural town 229 miles (about 4 hours) north of Eau Claire. Melinda is also undergoing treatments for breast cancer, and she has been immunocompromised for the entirety of the pandemic. In her interview, Melinda discusses how her cancer treatments impacted her ability to teach during the early stages of the pandemic in 2020 as well as how her job has changed over the past 20 months. Melinda shares how childhood development has evolved at the early childhood and kindergarten levels and how her role as a teacher has shifted. Melinda also discusses how parents and the public have interfered with her (and other teachers in her district) abilities to teach in schools safely. She discusses her school district’s mask mandate and the public’s response and pushback to vaccinations and masking in the small, rural community in Northern Minnesota. -
2022-06-23
Smiles on and masks off
This is an Instagram post from physicianendocrinologist. This is about a changing mask policy at the endocrinologist office that posted this. It encourages people that are immunocompromised to wear masks though. -
2022-05-22
Proud to play our part
This is an Instagram post by reddingrancheria. This is an advertisement for wearing a mask to protect the elderly. Seeing as elderly are more at risk for dying of COVID, I can understand why elderly would wear masks more often themselves, in addition to their caretakers wearing masks frequently. -
2022-03-08
I am not ready to give up my mask
This is an Instagram post by mrjeff2000. This post shows a picture with words on the mask for reasons to keep wearing one. Some of the reasons include: too many still being hospitalized; and the protection of the immunocompromised and disabled. -
2021-08-03
The Pandemic Is Not Over
This is an Instagram post by courtneyahndesign. This user is warning people about a new variant and how it is affecting others. She brings up the CDC and what they say about this issue. She says that if you are not, you should be wearing a mask and get vaccinated. -
2022-04-08
Our Roadmap Moving Forward
This is an Instagram post by smcpublichealth. This post is about vaccination status and the risks that they pose. Those unvaccinated are said to be highest risk. The immunocompromised are recommended to see a doctor about a fourth dose. If you are up to date on all vaccines and everyone else in the household is vaccinated, life can continue on as normal. In the hashtags below this post, it says to wear a mask, stay home when sick, and get tested. Obviously, despite it saying that those that are up to dates on vaccines and live with those also fully vaccinated are able to return to normal, culturally, I have seen some people out in public abiding by COVID restrictions. I think this is a hard habit to break, and for some, the feeling of security is worth continuing to wear a mask even if some places have already lifted mandates. My overall feeling from observing those at my own local church is that people are more lenient with mask use based on what the CDC says. A few did not wear masks despite the CDC recommendation, but once the CDC announced masks were not necessary, people at my church took them off. -
12/11/2020
Shawnda Kaeding Oral History, 2020/12/11
C19OH -
2020-04-29
Taylor Hubbard Oral History, 2020/04/29
C19OH -
2020-12-25
Covid Family Holidays
This picture was taken on Christmas Day of 2020. Due to my cancer diagnosis, a weak immune system, and the need or me to socially isolate Christmas gifts were delivered by the matriarch of my family, my mother. Adjusting family holiday traditions has been another consequence of Covid. -
2021-09-23
Lily Daugherty and Suhani Rathi Oral History, 2021/09/23
Two University students discuss their personal experiences during the pandemic, as well as the effects on their family and social lives. Frustrations with the Arizona government’s response to the pandemic are expressed. The specific experience of Asian Americans during a time of increased discrimination is also briefly discussed. -
2020-10-28
Pierogis and Kielbasa: Sound and Smell During COVID-19
Before the pandemic and the subsequent lockdowns began, hearing or seeing a loved one seemed almost a certainty. Although I worried for the safety of all my friends and family, I was most concerned with the well-being of my aging, immunocompromised grandmother. As a daughter of Eastern European immigrants, she was accustomed to eating ethnic Polish food. Throughout my childhood, she would kindly make pierogis and kielbasa sausage for me and my sister. The savory aroma of pierogis and kielbasa sausage cooking in sauerkraut inundated the senses. With the onset of the pandemic, however, my life, as with so many others, changed. Unfortunately, my grandmother is not accustomed to using video-chat services; however, hearing her voice over the phone or social-distancing on her porch allowed me to maintain contact, hear her voice, and smell the wonderful aroma of the food she always made for me as a child. Although momentary, the loss of hearing my grandmother’s voice as well as her delicious food made me realize how important it is to cherish the connections you have with your loved ones. During a time of uncertainty, tragedy, and disconnection, a loved one’s voice (as well as the food they make) can provide an emotional uplift. -
2021-07-27
Out of Touch
When I spent the Thanksgiving 2019 holiday with my family at my grandparent’s house, I had no idea that my hug goodbye would be the last hug I could share with my grandmother for a very long while. With the onset of the coronavirus pandemic, the CDC pushed multiple changes to prevent the spread of the virus which included social distancing. Both my grandparents are at high risk with underlying health conditions, so possible exposure to the virus was not an option for them. For us, social distancing also meant family distancing. Thankfully, I was able to have regular meetings with them on their front porch. We kept one of the front doors closed to separate us, and we talked from a safe distance. It was not the same as what I was used to and I missed the closeness that we once had, but they were moments to cherish as I did not know when I would get to hug them again. Sadly, I was not the only individual forced to find new ways to stay in touch with family members. All over the internet, heartbreaking pictures and videos surfaced showing families separated by hospital windows, mothers giving birth without family in the delivery room to support them and hold their new baby, and people ‘touching’ their loved one’s hands through glass barriers. These moments showed how the coronavirus left many families out of touch. Once the virus started to slow down and vaccines became accessible, I was finally able to spend more time with my grandparents without the physical barrier. Lots of people are talking about a ‘new normal’ now that cities are reopening and people are getting to go back to their lives. For me, getting to hug my grandmother again was a sign that everything would be okay, and life finally felt normal. -
2020-12-31
The Luck of the COVID Draw
Throughout the pandemic, my family and I have been extremely careful as to not catch the virus. My mother made sure my brother and I always had little bottles of hand sanitizer with us when we went to work or to the grocery store, my mom had multiple masks in the car for herself at all times, and my dad has been social distancing from people since he was born, so he was well prepared to sit in the house in social isolation. Being in PA, Gov. Tom Wolf had just about everything shut down from December 2020 to the first week of January 2021, but despite this and all of the precautions my mother had made sure we all took, my brother had brought it home from work without realizing it. We all realized we were probably going to get it when my brother was sent home from his new job after getting tested for COVID. Honestly, we were all a bit surprised it had not happened earlier, as he used to work at a hospital, but from there, we all started dropping like flies. My mother started getting symptoms around New Years Eve and my father followed suit days later. At this point, I was terrified. All I could think of is how my mother is immunocompromised and that she had it, and that I myself am immunocompromised and I would be next. Worst of all, when I am home from college, I sleep on the couch due to damage in my old bedroom, so keeping myself away from these other people in my house would prove to be near impossible (hence the meme saying “I need to get out of here”). Even if I would have been able to isolate myself, they all felt too sick to take care of themselves or one another, so that job fell upon me. At this point, I am running around the house, trying not to breathe around my family in the last few weeks that I would be able to spend time with them before heading back to school, while also stressing about having to go back to school, as well as having to quarantine for additional time after my family’s quarantine was over. A couple weeks in I start to feel the early signs of COVID, headaches, body aches, coughing, the works. I went to get tested in an absolute panic as to what this would mean for my own health and how it would affect me going back to school, only to get back a negative test. The headaches? I have migraines. The body aches? Well, I sleep on a couch where the cushions come out from under me while I sleep, so you tell me. The cough? I have a cat and a dog that I am fairly allergic to but refuse to stay away from because they are so precious. How I, out of all of my family, was able to avoid getting COVID despite being the college kid with a weakened immune system who played nurse to 3 COVID patients is beyond me. This experienced that COVID is really a gamble. You may have everything against you and not get it, or you may have done everything you could possibly do to avoid it and still catch it. Regardless, I will continue to err on the side of caution and wear my mask and carry my mother’s hand sanitizer with me. -
2020-12-17
Who should get the vaccine
This article just explains who should, and should not, be getting the vaccine. This depends on your health status and other issues such as vaccine allergies. -
2020-10-05
The Pandemic in Prisons: Covid-19, Repression, and the Carceral State
This podcast episode is from the Revolutionary Left Radio podcast featuring show host Breht and guests. -
2020-07-23
Snap Judgment podcast episode on covid-19 in San Quentin state prison (CA)
Podcast episode produced by Snap Judgment in which they look at covid-19 outbreaks in San Quentin prison -
2020-07-07
Conspiracy Theories can be Deadly
Conspiracy theories can be interesting, scary, and even entertaining. But they have real life consequences for some. This story about Carsyn Leigh Davis illustrates how dangerous conspiracy theories can be. Davis’s mother took her to a COVID-19 church party to purposely expose her to the virus. She was immunocompromised and became seriously ill. She was treated with treatments like hydroxychloriquine which have not been proven to be safe or effective by the FDA. She ultimately died from the disease. Here’s an example of folks who buy into conspiracy theories like Plandemic and Q-Anon and how their lack of information literacy has real consequences on their own health and the health of others. -
2020
In this Together
Its a bit of my experience of a day in the life living in the times of covid-19 -
2020-04
A Year I Will Never Forget
2020 started off a great year for me, I was so excited to turn 21 and envisioned this amazing year where I would travel, meet new people, etc. However quickly that dream ended, working in a pharmacy I was always on edge about the virus especially when the cases were spiking which caused this worry inside my family and I. I worried about my two immunocompromised parents mostly, what would happen to them if they got sick? Would I be the reason they did so? Would I bring home something from the pharmacy? Fortunately my family is safe and healthy but I wasn't, what I assumed was just a cold turned out to be one of the worst experiences of my life. I couldn't believe I had COVID-19, I was taking all precautions and yet it was inevitable thought I will never forget this birthday; celebrating turning 21 with COVID and eating ice cream cake in my pajamas. I was grateful I ended up recovering but it was devastating when I would hear almost weekly someone I knew had passed away whether it be a friend, patient, a familiar face. Sometimes I can't wrap my head around all of this happening, we have been in quarantine for over six months and it seems like there will be no end to this either. I want to remain optimistic and look forward to things but it so hard to when everything seems almost draining. The small things that once brought us to ease seems to be so far away now. -
2020
A cacophony of silence
This is a personal account of my time during the height of the pandemic, how it affected my studies, and ultimately the crushing loneliness of it all. Hello, My name is Shemar Providence and this is my account of the COVID19 pandemic. I will begin at the start of the virus. During this time I was going to classes as normal. The virus had become known as it swept through Wuhan china. My mother and I were worried that it would eventually make its way over to the states. Overall I would describe the climate around the virus as a general sense of apathy. “As long as it wasn't over here everything is fine” was a common sentiment among my peers as well as governing officials. It was the beginning of March when it began to spread like wildfire in new york. The most apathetic of us were now worried or decided to stay home. Colleges began to transition to online learning to stop the spread. Within about 2 weeks, from the gossip to the first outbreak, New york was put into a standstill. I was born with asthma as well as a weakened immune system. For me, the virus was a matter of life and death. I live with my mother who quarantined me in the house until the virus would cool down. We bought masks, hand sanitizer, gloves, whatever we could get our hands on to keep each other safe. During this time the mania had begun all over the country. People were buying things in bulk fighting each other over the most basic of things. It was a mess. it was approaching the end of March. In just a few short weeks I got a glimpse at what pandemonium looked like. Remote learning was a challenge. My neighborhood had poor connectivity issues. For about half of April, I had no internet connection and could not reach 2 of my professors. I ended up not getting credit for those classes. For the other professors, I was able to reach I was able to come up with a compromise. A lot of instructors weren't really well versed in remote learning and would go missing some days. With poor connectivity zoom meetings would stutter and stop. Overall the entire learning process was halted not only for me but for others as well. Considering how many others had a poor connection and were forced to drop classes. The greatest thing to experience first hand was the politics of the virus. You would think a matter pertaining to community health would not become a divisive issue but it was. Like everything in recent years, it had to be split down the middle to appeal to the most radical on both sides. Some people were saying it was a hoax and that the government was seeing how far they could control people. These people felt as though being forced to wear a mask violated their civil liberties. These were the most apathetic of us not caring about what happens to those of us who are less healthy. They bemoaned anyone who would wear a mask as a democrat thus sparking the aforementioned democrats to return fire. And like that the division grew. I think the isolation from the quarantine probably helped to heighten tensions but looking at it live it just seems so stupid. A matter as simple as stopping the spread became a democrat and republican issue, and a rights issue. republican s even put less emphasis on the virus due to it spreading in primarily blue states. It was all truly awful. With the country seemingly falling apart in pandemonia staying at home felt more and more suffocating. The same four walls became a coffin of sorts. If the virus got in I would be done for. However, I was still dead to the world around me. Keeping touch with friends was my only salvation between schoolwork and deafening silence. It didn't help that my own mother kept live streaming the ongoing pain at its height. I couldn't escape it. The death of the depression the pain. It was all around me. People I knew and loved in my neighborhood died and I couldn't even see them go. I grew depressed and more cynical as a person. It seemed like hell. It just kept going and going. School ended leaving me more depressed over my studies than ever. But at least the rate of death had started to decrease. It is starting to get better, slowly but surely. But it still feels as though there is worse yet to come. This year has been so divisive and sad. And I feel like it will just keep getting worse. -
05/08/2020
Greta Oral History, 2020/05/08
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2020-07-12
Work Reality
My mother has been a healthcare employee for over 20 years. She loves her job and her patients. She is also immunodeficient. At the start of the COVID-19 pandemic, she was placed on medical leave. After 3 months in isolation, she returned to work to face her new reality. Thankfully, in the time she was at home, her employer acquired ppe and has implemented strict social distancing policies, including teleappoinments. Her employer has been understanding and supportive of her medical needs. And she feels as safe as she can feel when she is at work. But this doesn't mean it is easy. She wears two masks (an N95 mask covered by a secondary mask) and goggles the entire time she works. She has deep seemingly permanent indentations from the ppe on her face. Even with the protection, she still worries about her level of exposure as she comes into contact with 20-30 different patients per day. I have only seen her once since the shelter-in-place orders began in California. And I'm not sure when I'll see her again. I miss her. Her grandkids miss her. When people question why my family is taking the COVID-19 pandemic so seriously, I tell them about my mom. She does not have a choice to stay home or to avoid exposure to the virus. With her condition, she is high risk and could likely die. If I can help her, and many others like her, stay safe during this pandemic, I will do it. Even if it means a great deal of personal sacrifice. -
2020-06-06
Chronically ill and highly vulnerable amid Covid-19
During this Covid-19 pandemic, we’ve learnt that some people might be more vulnerable than others. Who is high risk? I am! A quick google search shows that a person taking high doses of steroids or immunosuppressant medication can be considered as clinically extremely vulnerable. I take both. The fear is real. It has always been here but now I need to be even more careful. The lines are blurred; how ill do I need to feel before deciding that I need to go to the hospital, an incubator for all kinds of infections and an even more potential risk in catching the deadly virus? As much as the hospital is the solution, it might as well be death welcoming me with arms open. The number of infected persons has rocketing at a time, and I could not help falling sick despite not having gone out a single time during the 3-month lockdown. It was finally time to go there, the hospital! I went armed to the teeth with my mask, gloves, and a sanitiser, cautious but still anxious, and I was met with an eerily almost empty building. The place which was usually buzzing with activity at all times of the day only had a handful of doctors and nurses but no patients! It seemed like everyone had respected the lockdown measures to the letter. I was relieved and I was cared for with the staff following all precautionary measures. In a measure of solidarity, the people had decided to respect the lockdown rules to avoid the spread of the virus and had in unthinkingly doing so, potentially saved the health of many vulnerable patients. I felt safe and I still do. Caring for others is after all a social responsibility and an expression of what it means to be human and humane. -
2020-05-09
New Realities
When visiting my mother this weekend, we decided to take a trip to the gas station to get some drinks. My mom is immunocompromised and takes Covid-19 very seriously. She said if I planned on going into the convenience store I had to wear a mask. She keeps masks like this in the glove box as well as hand sanitizer in her car. She puts on the mask and sanitizer before she enters the store, and puts sanitizer on again when she returns home, before she goes inside. -
2020-04-13
Grandparents watching the news on Covid-19/coronavirus / Hist15H CSUS
This image shows two elderly people, a man, and women, sitting on their couch watching a news report of another coronavirus case. A cat is sitting on the couch as well which shows how the only company they had other than themselves was their pets and the TV. Many immunocompetent members of our society have to stay home during this pandemic because they do not want to risk contracting the disease. Many elderly specifically are afraid to even go to the grocery store in fear of the virus, so instead, they spend their days at home. Many people are watching the news and keeping u with politics even more now, looking out for the next changes that are to take place with this novel virus. https://www.instagram.com/p/B-17cXkpAIG/ -
2020-04-28
Coping with COVID-19 with an Immunocompromised Child
Coping with COVID-19 with an Immunocompromised Child _________________________ My step-daughter, Selena, was diagnosed with cancer in November of 2017 at the age of 3. She had to undergo two surgeries, many months of chemo therapy, and is now missing a kidney and part of her lung. This was a very scary time and health was constantly on the minds of our family. We didn’t go anywhere without a mask, washed our hands constantly, had to avoid anyone who seemed like they might be sick. My wife, then girlfriend, and I had to limit our exposure because we knew that anything we caught would get her and be twice as worse. If we came down with a cough or a runny nose, we either had to isolate to a different part of the house or have Selena stay with her grandparents until we got better to try and keep her from catching anything. Selena missed going to preschool so that she would have less exposure and keep getting healthy. Even with her going into remission in June of 2018, she was diagnosed with asthma after a winter cold turned to pneumonia and she had to be hospitalized in late 2019. The health of her immune system has been a never ending concern. The rise of COVID-19 has been a living nightmare. The constant worry of her getting sick came back and hit like a truck. Watching the number of cases rise throughout the world and in the US and the lack of response was awful. As the virus continued to spread, eventually schools and business were shut down. My wife and step-daughter would be at home and not have to go out, but I did. I was considered an essential worker due to working with government contracts and everyday had to work in close proximity of others. I heard or talked to multiple coworkers who said it was only the flu and corona wasn’t a big deal. It would pass and it wouldn’t affect most people, so why should we have to worry? But I worried. Even if most people would survive it, my daughter might not. She was at the forefront of my mind every time someone complained about stores closing or joked about keeping distant from one another. These were the people who would destroy my family because of their carelessness. Every day of work I had to be on my guard. When work sent home those that could work remotely, I still had to work on site. Even as my workplace began to implement precautions like telling people to stay 6 apart, I had to side step around those that would otherwise walk right past you. I would have to hang back and wait while others would crowd into the bathroom. I avoided lunch rooms and break areas, only eating in my car. I wore gloves all day and wiped my work surface multiple times a day. When I got home, I had to immediately put my work cloths in the wash and wipe everything I took with me to work. I would have to tell my daughter to not hug me until I had changed. I hated having to go to work. They said that the work we did was important and thank you for working during these hard times, but it didn’t matter. I wasn’t concerned about myself or about the work I was doing. I was risking my daughter’s life every single day so that someone else could profit. I had to risk her life because without my income my family wouldn’t have a house to live in or food to eat. I was forced to put her on the line whether I wanted to or not. It was crushing me inside. How would I live with myself if she got sick because I had to go to work? If she died? I asked myself these questions every single day. Finally, after over a month of increased rules and precautionary measures at work, the implemented a system so you could apply to stay home with pay if you or a family member were at high risk. It took two weeks of back and forth paperwork, but at long last it was approved. The constant daily stress subsided to a much more manageable level. There is still some concern. I have to be cautious when picking up groceries, even though we only use curbside pickup. I had to wait outside of Walmart at open to get toilet paper and then decontaminate upon returning home. I worry about the return of COVID-19 in the fall and if these precautions will be implemented any faster or will we have to same slow reaction. I think about all of those still not able to leave work; risking the lives of those they love against their will. I worry for those less fortunate who don’t have income now and are at risk of losing everything because of something out of their hands. I think what I worry most about after all that has happened this year is nothing changing.